Journal of Biochemistry and Biotechnology

Research Article - Journal of Biochemistry and Biotechnology (2018) Volume 1, Issue 1

A study on parental perception towards children's palliative with special reference to solace thissur.

Thulasi Sathyan1 and Kumar Sai Sailesh2*

1Department of Hospital Administration, Little Flower Institute of Medical Sciences and Research, Angamaly, Kerala, India

2Department of Physiology, DM Wayanad Institute of Medical Sciences, Naseera Nagar, Meppadi, Wayanad, Kerala, India

*Corresponding Author:
Kumar Sai Sailesh
Assistant Professor, Department of Physiology
DM Wayanad Institute of Medical Sciences
Naseera Nagar, Meppadi, Wayanad, Kerala, India
E-mail: [email protected]

Accepted date: 10 January, 2018

Citation: Sathyan/Sai Sailesh. A study on parental perception towards children's palliative with special reference to solace thrissur. J Biochem Biotech. 2018;1(1):52-54.

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Abstract

The current study was undertaken to observe the effectiveness of children's palliative with special reference to Solace Thissur. This study mainly considers the 0-18 age group patient's parents to understand the parental perception towards children's palliative. Researcher used 30 samples for collecting data in Thissur district. Here Simple random sampling is used by researcher, which means that refers to equal chance to be selecting all samples. Questionnaire methods are used for collecting data. Palliative care includes the control of pain and other symptoms and addresses the psychological, social, or spiritual problems of children and their family living with life-threatening or terminal conditions.

Keywords

Palliative care, Spiritual problems, Children

Introduction

In current society, many children are facing various diseases like cancer, stroke, and paraplegia [1]. So the children and their family need many supports like financial, medical, psychological so on. [2] Because some of the family can't extent holistic support to needed the children. So the Solace palliative care at Thrissur gives moral financial support to underprivileged children who is suffering in and out of hospitals by various diseases, solace is mainly focusing the step by step delivering the much needed assistance to those children who are affected with serious and long term illness and alleviates their pain and family suffering.

Many studies were conducted at many countries like Africa, Zimbabwe, curia etc. for the importance and effectiveness of children's palliative care. In Kerala also have children's palliative but there were not many studies about it. So here in this research researcher studying about the effectiveness of children's palliative with special reference to Solace Thrissur [3].

Materials and Methods

This study mainly considers the 0-18 age group patient's parents to understand the parental perception towards children's palliative. Researcher used 30 samples for collecting data in Thrissur district. Here Simple random sampling is used by researcher, which means that refers to equal chance to be selecting all samples.

Data collection tool

Questionnaire methods are used for collecting data.

Pilot study

A pilot study was conducted with the objectives of ascertaining the feasibility of the scientific study on the topic and also to find out whether the researcher would get suitable samples for carrying on the research. For this the researcher met Palliative workers and children's palliative in Solace Thrissur.

The pre-test has been conducted among the four respondents to see whether any modifications were needed to be made in the data collection tool.

Results

Results are mentioned in Tables 1-6.

Sl. No. Sex Frequency Percentage
1 Male 18 60%
2 Female 12 40%
  Total 30 100%

Table 1: Sex wise distribution of respondent.

Sl. No. Age Frequency Percentage
1 1 to 5 17 56.66%
2 6 to 10 9 30%
3 11 to 15 2 6.66%
4 16 to 18 2 6.66%
  Total 30 100%

Table 2: Age wise distribution.

Sl. No. Reason for registration Frequency Percentage
1 Cerebral palsy 10 33.33%
2 Mentally retarded 3 10%
3 Cancer 3 10%
4 Bed redden 2 6.66%
5 Others 12 40%
  Total 30 100%

Table 3: Reason for registration.

Sl. No Duration of disease Frequency Percentage
1 By birth 18 60%
2 2 years 2 6.66%
3 3 years 3 10%
4 Others 7 23.33%
  Total 30 100%

Table 4: Duration of disease.

Sl. No. Does anyone of the child’s family member had the disease Frequency Percentage
1 Yes 7 23.33%
2 No 23 76.66%
  Total 30 100%

Table 5: Medical history of family members.

Sl. No Daily medicines Frequency Percentage
1 Yes 26 86.66%
2 No 4 13.33%
  Total 30 100%

Table 6: Daily medicines.

The above table represent that, 60% of respondent are male, in this study majority of them are male.

The above table shows that 56.66% of children are on the 1 to 5 age group, 30% are 6 to 10 age group and 6.66% of children are in 11 to 15 and 16 to 18 age groups. The majority of respondent include in 1 to 5 age group children.

The above table shows various disease which registered in children’s palliative. The majority children are caused cerebral palsy and 10% of children are mentally retarded and cancer patients.

The above table shows that 60% of children are suffering various diseases by birth itself, 6.66% of children are of 2 years. 10% are of with the duration of 3 years and remain 23.33% are with various years.

Majority of children include in by birth and least children with the duration of 3 years.

The table shows that, 23.33% of children’s family had the disease and 76.66% children’s family members don’t had disease.

This table represents the number of children taking daily medicine or not. The majority are using daily medicines due to their disease.

Discussion

Findings are a systematic investigation to establish facts or principles or to collect information on the topic on the effectiveness of children's palliative with special reference top Solace Thrissur.

The majority of the children are in the age group of 1-5. The majority (60%) patients are male, female patients are not interested to come palliative. Solace palliative is providing recreation activities, majority of the children are not participating, but some of them are participating, these help them to get recreation, refreshment. Many of the fathers are avoiding the patients and their mother because of the illness of the children. Majority of respondents communicate their financial problem with the palliative volunteers. All (100%) of the respondents are satisfied from palliative services. Mainly the homecare services are provided for the severe cases that do not have the ability to do their basic and daily activities. Solace palliative is providing medically, socially, financial support to the patients. The majority (30%) patients come to palliative care under the suggestion of some members and 20% of members are come under the suggestion of particular doctor a person who suffering many kind of diseases with poor economy. The doctor is sent them to Solace palliative care for getting services from the side of palliative. 100% respondents are satisfied in palliative workers. While parents visiting the Solace palliative they mostly discussed about the current situation of the children, improvements, medical expenses, financial capacity, etc. The majority of parents visited the palliative once in a month. The majority of patients need above 3000 for their medical expenses in a month. Palliative was aware about the financial background of the patients.

Majority children are uneducated because they can't attend the school due to their diseases.

The majority (56.66%) affected cerebral palsy and 10% of them are affected cancer and mentally retarded. The majority (86.66%) of children are taking daily medicines for their diseases. Solace palliative is providing ration support to very poor family who can't earn for their livelihood. Every respondent have no suggestion about the palliative services because they were satisfied in the services of palliative. The minority (40%) children get help from others help such as, from relatives, religious institution, neighbours etc. The majority (63.33%) respondent are satisfied in both hospital services as well as palliative services. Some of the parents wish to get physiotherapy treatment from Solace.

Conclusion

A child is a homosapien between the stages of birth and puberty. Many children affect many kind of diseases, palliative care for children living with a life-threatening or terminal condition. Advice on the development of a palliative care plan and on working with parents and children is also provided. Barriers to the provision of effective children's palliative care and potential solutions are identified.

For children living with life threatening or terminal conditions, medical technology are used only when the benefits from palliative care when no treatment has been shown to alter substantially the expected progression towards death. Palliative care seeks to enhance quality of life in the face of an ultimately terminal condition. Palliative treatments focus on the relief of symptoms and conditions that causes distress and detract from the child's enjoyment of life. It also seeks to ensure that bereaved families are able to remain functional and intact [4-10].

Palliative care includes the control of pain and other symptoms and addresses the psychological, social, or spiritual problems of children and their family living with life-threatening or terminal conditions [11-14]. The goal of palliative care is the achievement of the best quality of life for patients and their families, consistent with their values, regardless of the location of the patient [3].

References